Table 1 Parent demographics, type of burden perceived by caregivers, and type of support received by families
From: Socioeconomic profile of families with spina bifida children in Turkey
Number of subjects | ||
|---|---|---|
Mothers | Fathers | |
Highest level of parent education | ||
No education | 6 | 4 |
Elementary level | 7 | 3 |
Elementary school graduate | 41 | 33 |
Middle school graduate | 21 | 13 |
High school graduate | 7 | 22 |
Vocational school graduate | 1 | 2 |
University graduate | 1 | 5 |
Not mentioned | 2 | 4 |
Occupation during the periconceptional period | ||
Housewife/Unemployed | 66 | 3 |
Public sector | 5 | 48 |
Private sector | 6 | 32 |
Not mentioned | 8 | 3 |
Number of abortion | ||
None | 44 | |
1 | 12 | |
2 or 3 | 4 | |
4 or more | 4 | |
Not mentioned | 22 | |
Number of viable pregnancies | ||
1 | 28 | |
2 | 32 | |
3 | 18 | |
4 or more | 7 | |
Not mentioned | 1 | |
Type of birth | ||
Vaginal | 28 | |
Cesarean section | 39 | |
Not mentioned | 19 | |
Parental consanguinity | ||
No | 15 | |
Yes | 50 | |
Not mentioned | 21 | |
Monthly household income (Turkish Lira) | ||
≤ 10.000 | 46 | |
10.001–20.000 | 25 | |
20.001–30.000 | 3 | |
30.000 ≥ | 6 | |
Not mentioned | 6 | |
Close follow-up care and observations | ||
No | 14 | |
Yes | 72 | |
Access to physiotherapy | ||
No | 68 | |
Yes | 13 | |
Not mentioned | 5 | |
Access to rehabilitation programs | ||
No | 68 | |
Yes | 16 | |
Not mentioned | 2 | |
Main type of burden perceived by families | ||
Financial | 18 | 27 |
Physical | 8 | 4 |
Emotional | 26 | 14 |
Lack of social support | 1 | 1 |
Disruption of family interaction | 9 | 1 |
Disruption of the routine family activities | 12 | 20 |
Disruption of family leisure | 12 | 19 |
Main type of support received by families | ||
Social | 10 | |
Economic | 15 | |
Psychological | 13 | |
No support | 48 | |